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 AUTISM BUZZ

P.O. Box 1431
Jefferson City, MO 65102

Missouri Autism Updates:  Archived

2009 Legislative Session Updates
Written by G. K. Luetkemeyer,                                      An “Autism Mom” at the Capitol
(I’m not a lobbyist, but I stop by the capitol between groceries, laundry, and kids!)

  • Update:  May 15, 2009

    Time runs out for Autism Insurance Bill

    In the final week scurry at the capitol, some bills were re-written, some bills were dragged to the forefront, and others were left behind.  Unfortunately, the highest-profile autism bill, SB 167's autism insurance reform, was one of those NOT taken up by the House during the last week.
    (Click here for news article:  How Major Bills fared in MO Legislature)

     SB 167 was passed by the Senate by a 29-2 vote on April 23, but after slowing in the House, had only a narrow chance of passage heading into the final week of session.  After successfully passing through the Rules committee on Monday, hopes were rekindled.  Even though SB 167 had some revisions made in House committees, it was expected to pass if it could make it to a vote on the House floor and was expected to be approved again in the Senate, and be signed by the Governor.

    But ... it was NOT placed on the House calendar in a timely fashion, and was NOT given time for House floor debate, so it never came up for full House debate and a vote.   The House Fiscal Review committee was the last obstacle responsible for slowing the bill, with the chairman deciding to NOT hold a committee vote on the bill, which prevented it from being eligible for debate on the House floor. 

    Governor Nixon had previously stated he would consider autism insurance as a topic for special session (click here for video) ... but that scenario appears unlikely, given the passage of other key bills.

    But let's not forget other victories...
    Senator Eric Schmitt's Autism Project bill is "Truly Agreed To and Finally Passed" and will be heading to Governor for approval !!!


    THE BUZZ:    SB 167 suffered from Republican majority leadership FAILING to make it a priority issue this session, even though the bill had bipartisan support and Republican sponsors.  General consensus seems to be the bill gained MANY supporters throughout the session, and should be well-received next year.


    A note of acknowledgment to all the autism organizations around the state who worked together this session in the spirit of cooperation.

    And special thanks to ALL the families who traveled to the capitol week after week, and to those who advocated from home - through calls, emails, letters, and faxes.  Your voices were heard and you have given autism issues a face and an identity!

     
    ***It is an EXTREMELY opportune time to contact your legislators to let them know your opinions of the 2009 session, to thank them for attention to autism issues, and let them know what you expect for next year!

  • Update:  April 30, 2009

    Legislative Update
    April 30, 2009:  Jefferson City

    Autism Insurance Bill GAINING SPEED in House !!!
    Governor calls for passage of autism insurance legislation !!!

    Now is the time in session when the last of the few viable bills emerge from the pack and keep progressing ... and after hanging in with the rest of the crowd for the entire session, the issue of autism insurance reform has finally emerged! 
    With the Senate Bill (SB 167) moving over to the House last week, we all waited to see if it would get referred to committee and start the House obstacle course.  This is the bill the autism community will now be watching.
    And ...all in this week, the Speaker referred the bill to a favorable committee, the same committee that heard HBs 357/298 and had approved them twice.
    In committee on Thursday, the bill was changed quite a bit, but the core of the bill - extending benefits to cover treatments prescribed by a physician- is intact.
    (The major changes are a lower dollar amount for ABA - now 36K, with no limits on visits or other therapies - and a small business protection provision, instead of an exclusion.)

    Appropriately, on the last day of autism awareness month, the committee approved the bill by a 7-1 vote, giving the Senate bill a big push towards the finish line!
    SB 167 will head to the House rules committee, then after passage there, it will be eligible for the House calendar & Floor debate.

    The sprint is on - with two weeks left to go in the session!
    And the bill is gaining speed!


    ALSO ...

    Governor Nixon has called for passage of autism insurance legislation THIS session!  Speaking in southeast Missouri last Friday, he and Senator Crowell declared bipartisan support for autism insurance coverage. 
    And this past Friday, upon committee approval, he issued ANOTHER press release on the autism insurance bill alone.  This truly raises the level of awareness across the state!
    Today, he is scheduled to visit an autism center in Kansas City, as well.

    Governor's Press Release:
    Gov. Nixon tours Cape Girardeau autism center with families, announces support for coverage legislation

    Gov. Nixon's statement on House committee passage of autism insurance legislation


    THE BUZZ: 
    SB 167 may be one of the few pieces of bipartisan legislation that has a real chance to pass this session!  The opposition appears to be VERY concerned!!!  The bill could be on the House floor sometime this week, if all goes well.
    It is very encouraging to see progress this late in session, and a great time to become more involved.
    The families that have come from around the state and walked the halls at the Capitol this session are AMAZING and well-informed to advocate for the autism community!!!
    Best advice is to stay positive in your messages (whether calling, emailing, faxing, or writing)  - and thank everyone for their time and attention to our issues!

     

    UPDATE  April 23, 2009

    Legislative Update
    April 23, 2009:  Jefferson City

    Autism Insurance Bill passes out of Senate!!!

    What a difference a day can make!  
    SB 167, the autism insurance bill, passed out of the MO Senate today FINALLY! 

    Short unofficial summary:  After a first round approval in Senate a few weeks ago (which in bill time is like 5 years!), it got snagged down for what seemed like forever by the fiscal oversight committee chairman.
    But all of a sudden, it was put on committee calendar yesterday afternoon, reviewed it again this morning, & passed it out. THEN leadership snatched it up and put it on the floor for final vote, and in less than two hours it was done in the senate.  Wham Bam! 
    (There are many texters out there with sore thumbs from all the action!)


    For official news coverage, check out this article via Business Week online:
    Missouri Senate passes autism insurance mandate

    SB 167 will be on its way to the House, where the House version of the autism insurance bill (HB 357/298) still is waiting to be brought up for floor debate.


    Click here for the most recent versions:
    HB 357/298
    SB 167 (perfected version)


    HANG IN THERE, GANG!  And STAY SMILING & POSITIVE!


    What can you do right now:
    Send a thank-you note, email, or card to any and all of the bill sponsors and co-sponsors, and members of the Senate.  

    Appreciation fosters loyalty to all autism initiatives, now and in the future!


    The Buzz:  The Speaker of the House's office has taken the stance that autism insurance reform is NOT one of their priorities.  Watch for advocacy groups sending action alerts as to how you can get involved in "positive persuasion" efforts!

    Click here to read a GREAT editorial in Joplin Globe & leave a comment!
     

     

     

     

     

  • Update:  April 9, 2009

    Insurance bills still alive but starving for attention!

    First a little good news ...
    The Autism Project bill SB 157 (sponsored by Senator Eric Schmitt of St. Louis County) which would codify the Missouri Autism Projects had its first hearing in the House in committee, and will likely stay a consent bill (no opposition) and has a good chance to finish the race to become a law this session.

    FYI:  Senator Schmitt, who was the special host of this year's autism rally legislative briefing, is the parent of a child on the autism spectrum, and this bill would be the newly elected senator's first bill to pass.


    And now to the insurance bills ...
    OH, what a difference a week makes!  Last week the papers had declared HB 357/298 "dead" in the House because it had been sent back from the Rules committee.  (And usually this would be the case.)  But ...the bill was heard again in the Health Care Policy committee and was amended on Wednesday and approved unanimously, with some changes to language which lowered the cap for ABA and changed age limits in an attempt to make the bill more closely resemble the Senate version (SB 167). 
    Then on Thursday, April 9, was heard in Rules committee and THIS time passed unanimously there, as well.
    Click here for the most recent versions:
    HB 357/298
    SB 167 (perfected version)

    So now what?

    HB 357/298 will get in line with MANY other bills waiting for a calendar slot to head to the House floor for debate.  The majority party determines the order of the calendar, and therefore the fate of the House bill will depend on timely action.

    Watch for updates through many autism organizations (local groups, MO-FEAT, Autism Speaks, Autism Society of America...) about how you can effectively direct your advocacy efforts!
     
    The BUZZ:
    Autism insurance reform does NOT seem to be every Republican's priorities this session, and the issue seems to be taking a backseat to other legislative priorities.  So, while we are waiting ...

    HANG IN THERE, GANG!  And STAY SMILING & POSITIVE!

    What can you do right now:
    Send a thank-you note, email, or card to any and all of the bill sponsors and co-sponsors.  (Click here for a list of names and contact info).  Appreciation fosters loyalty to all autism initiatives, now and in the future!

    AND meanwhile back in the Senate ...
    The Senate bill (SB 167) is STILL in Govt. Accountability and Fiscal Oversight committee, and it is STILL uncertain what the committee will do with the bill - meaning whether or not it will be scheduled to be brought up for a vote.  Let's see if any attitudes change over the long weekend - so stay tuned!


    So ... both insurance bills are starving for attention from the majority (Republicans), but haven't been "killed" or even overtly and publicly threatened ...  But remember ... the legislative clock is ticking!!!

  • Update:  April 4, 2009

    The insurance bills aren't dead just yet!

    First a little good news ...
    The Autism Project bill HB 525 was approved on the House floor, a companion to SB 157, which has already passed the Senate.  This initiative would codify the DMH/DD Missouri Autism Projects.

    Also, in House budget negotiations on the floor, language was added that would favorably affect families whose children with autism are enrolled in the MC+ health insurance program.  The budget bills are now being heard in Senate appropriations hearings.

    A small, but hardy group of autism advocates gathered at the Capitol on Wednesday, April 1, this week to kickoff Autism Awareness Month at the Capitol. Many providers and family groups had display tables, and others "made the rounds".  A Kansas City moms' group continued their ongoing blitz of the Capitol advocating for insurance coverage - they are quite well-known in the building!

    A big "THANK YOU" to all who devoted your day to advocating and for a job well done!

    And now to the big news of the week ...
    Many of you may have seen reports this week about the demise of the autism insurance bills this week, most of which were triggered by press release that was sent out by House Democrats condemning the House Republicans for "killing the autism insurance bill on World Autism Day".
    While it is true that the House Rules committee did send HB 357/298 back to its original committee, but the report is NOT exactly accurate, because the bill is not exactly dead.
     
    Here is one of the more detailed articles about it, from the Jefferson City News Tribune:  "Autism insurance bill hung up in MO Legislature"
     
     
    The BUZZ:
    It is believed that House republicans, the committee chair, and even some of the supporters of the bill wanted to make revisions in the bill, and the intention was not to kill it.
    (Certainly twisted and not pretty, but maybe not malicious - and in hind-sight, seemingly ill-advised!)
     
    The REVISED House version is eagerly awaited ... the autism community needs to pay close attention to language at this point in the process, as the bill is being revised and amended, so that the original intent of the bill is not compromised.

    POLITICS!!!  Oh, the drama!
     
    AND meanwhile back in the Senate ...
    The Senate bill (SB 167) has been approved on the floor, and has been sent to Govt. Accountability and Fiscal Oversight committee, chaired by Sen Chuck Purgason of West Plains.
    The bill's fiscal note (how much the bill is projected to cost the state of Missouri if made law) is high, and it is uncertain what the committee will do with the bill - meaning whether or not it will be scheduled to be brought up for a vote.

    Many are worried the bill will languish here, without action.
     
    So both bills have been slowed, but are not declared dead ... yet!
    But remember ... the legislative clock is ticking!!!

    Want to help support the insurance bills?
    Click here for INFO on HOW YOU CAN GET INVOLVED!
  • Update:  March 23, 2009

     SB 167 survives first round of floor debate
    March 23, 2009:  Jefferson City
    SB 167 – sponsored by Sen. Rupp (R – Wentzville) is the autism insurance bill that was debated this afternoon by the Senate.  
    Sen. Rupp did offer a Senate Substitute, and that was the bill that was debated.

     Some of the changes included in the substitute are: 1) lowers the cap to $55,000 per year for under the age of 15 and no ABA coverage for those 15 years or older; 2) removes the nutritional supplements; 3) changes the age for coverage from 21 to 18.

    (Link to perfected bill language on Missouri Senate Website)

    During the approx. 90 minutes of floor debate, the discussion was mostly comprised of arguments in favor of the bill - including bill sponsor Senator Rupp of St. Charles making an excellent case in support of extending insurance coverage to children with autism. 

    Senator Eric Schmitt of St. Louis County, a parent of a child with autism, also made an impassioned speech in support of the bill.  

    The only amendment offered was one to exempt small employers, but that amendment was ultimately voted down, after helpful comments made by Senator Jim Lembke from St. Louis County. The bill had been widened in coverage in committee by amendments offered by Senator Jason Crowell from Cape Girardeau, who pushed to cover as many families as possible. 

    After debate concluded, the Senate gave preliminary approval to the substitute SB 167 by a floor voice vote, with one more positive formal recorded vote needed ...

    BUT ... 

    because SB 167 currently has a fiscal note attached  (the notice of potential financial impact to the state budget), the bill has been referred to another Senate committee - Governmental Accountability and Fiscal Oversight.


    Official Status for SB 167:

     3/24/2009 - S Formal Calendar S Bills for Third Reading--SS for SCS for SB 167-Rupp (In Fiscal Oversight)

     The Buzz: 
    The bill is expected to have even a much harder time in the House, so contacting your representative is crucial!

     

     

  • This Week's Update:  Feb 22
    Missouri Autism Legislative Update

    Insurance Coverage 
    SB 167  (Filed by Senator Scott Rupp, R- Wentzville)
    HB 298 (Grisamore) & HB 357 (Scharnhorst) :Both similar to to SB 167)
    HB 79 (Lampe, R - Springfield)

     UPDATE:  This past week, hearings were held in both the Senate & the House on autism insurance coverage bills.  The hearing rooms were quite full with a polite group of parents (even a few kiddos), interested supporters form various autism groups and organizations across the state, the insurance lobbyists, and other curious capitol onlookers - standing room only!

    Expert witnesses in favor of the bills gave the facts & figures and tried to address potential arguments against the bills, which are coming from the insurance lobby.  The supporters laid out a case to justify autism insurance coverage, addressing the medical necessity and the relatively low cost projections of implementing coverage (less than a 1% increase in premiums).  Families in support of the bill described the therapies they use and the difficulty of getting reimbursement from insurance companies. 

    While the Senate hearing ran short of time (the opposition will not get to speak until this week), in the House hearing we were able to hear some of the arguments from the insurance companies against the bills.

    The main reasons given for opposing the bills is that they are too expensive and would raise premiums too much for Missourians.  Others argued that the bills are "bad policy" and unfair because they don't provide coverage for everyone.  (Not that they would support them if they covered more people - Quite the opposite!)  The arguments of the insurance lobbyists were met with a few tough questions from the committee members, and their responses often brought small waves of disbelieving snickers from the mainly pro-autism audience. 

     SPECIAL THANKS to all of those who traveled to attend the hearings!  There were many who did not get to speak, but their presence was definitely noted!

    This week's insurance coverage activities will also hit both the House and the Senate. 
    In the House, additional testimony will be heard this Tuesday, Feb 24 at 8:00 am, to allow families to have more time to speak in favor of the bills, as well as the other autism bills that are on the agenda.  And don't forget about the additional Senate testimony to be heard in the afternoon - time to hear the opposition for Rupp's SB 167, at 1:00 pm on Tuesday, Feb 24. 

     The Buzz:  The reality is the bills are not in their final form yet, some changes can be expected -  especially as to WHAT TYPES of policies the bills will cover, age limits, and dollar amounts.  We shall see ...

    Autism Projects
    SB 157:  proposes to codify the existing Missouri Autism Projects
    (Schmitt, R - Kirkwood)
           - HB 525 (Grisamore, R - Lee's Summit)

    UPDATE:  Hearing completed in the Senate on Feb 10, a slightly modified version passed out of committee as a consent bill on Feb 17.  Now this bill will move to Senate calendar, but there is also a House companion filed by Rep. Grisamore, HB 525, which will be heard in committee Tuesday morning, as well.

    Education

    UPDATE:  This week, a House committee hear HB 76, sponsored by Rep. Lampe, which proposes to change a number of requirements related to education for children with autism spectrum disorders.

    The Buzz:  The use of seclusion rooms will likely be the next controversial issue to hit the special education community - and will bring about some interesting debate, to say the least! 
  • Wednesday, Feb 18 House hearing summary:
    House Testimony on two autism insurance bills was held on Wednesday in the Health Care Policy Committee, Rep. Wayne Cooper, chairman.  HB 298 (filed by Grisamore) and HB 357 (filed by Scharnhorst) were heard concurrently.  Testimony opened with the bill sponsors speaking to the coverage in the bills and their reasons for sponsoring.  Then witnesses in support of the bills spoke, expert witnesses gave the facts & figures behind the bills, and tried to address potential arguments against the bills, which was to come later from the insurance lobby.  The supporters laid out a case to justify autism insurance coverage, addressing the medical necessity, the efficacy of treatment (evidence-based ABA), and the relatively low cost projections of implementing coverage.  Lorri Unumb, the autism mom that successfully wrote and advocated for the passage of autism coverage in South Carolina testified as an expert witness, as she now serves as a senior policy analyst for Autism Speaks.  She specifically addressed legislation in other states and the fiscal note of the Missouri senate bill (the projections of the cost of implementing it to the state of Missouri), explaining that the legislative cost projections may have been based on faulty assumptions, giving it a much higher fiscal note than it deserved.  She urged the committee to address the disparity of the cost projections.  (In Missouri, bills with high fiscal notes typically are difficult to pass in our fiscally conservative legislature, especially in times of economic downturn.)

    Those speaking in opposition were predictably from the insurance industry.  The main reasons given for opposition to the bills was cost (too expensive, would raise premiums too much for MIssourians), that autism treatment is educational, and that the bill was "bad policy" and "socially unjust" (unfair because it doesn't provide coverage for everyone).  The arguments of the insurance lobbyists were met with tough questions from the committee members, and their responses often brought small waves of laughter from the mainly pro-autism audience. 
    Overall, the House committee appeared very receptive to the concept of autism insurance coverage.  The chairman extended opportunity for additional testimony since time was limited and many families had traveled to attend the hearing and were not able to testify, given the time restraints of the hearing.  Additional testimony will be heard this coming Tuesday morning Feb 24 at 8:00 am, at the beginning of the next hearing. 
    This next hearing will also cover other autism-related bills - HB  569, which is a" mandated offering" bill, which would require companies to offer special policies to cover autism treatments.  Sounds good in theory, but in reality, companies could charge whatever amount they wanted for these policies, and probably would set premiums so high that it would be unaffordable.  So, thanks, but no thanks, to that bill!  Also to be heard will be HB 76 & HB 79, both sponsored by Rep. Sara Lampe.  HB 79 is an autism insurance bill, which does differ from the bills heard this week, but is in the same spirit of providing coverage for autism treatments.  HB 76 relates to assessment and diagnosis. 
    The last bill on the schedule is HB 525 to codify the autism projects, which is a companion bill to Senator Schmitt's SB 157, which passed out of Senate committee as a 'consent bill', meaning it has no opposition and is non-controversial.

    And don't forget about the additional Senate testimony to be heard in the afternoon - time to hear the opposition for Rupp's SB 167.  Maybe the insurance companies will try and do some homework over the weekend and come up with stronger arguments next week.  That hearing will begin at 1:00 pm on Tuesday, Feb 24 Senate hearing room 1.
    Tuesday will be a busy day!  A Five-for-One special, no charge for admission!

    Tuesday, Feb 17 Senate hearing summary:
    On Tuesday, the Senate small business committee heard Sen Rupp's bill on Autism insurance, SB 167.  He is the chairman of that committee, so he turned the "chair" over to Senator Ridgeway (who had sponsored a similar piece last year) to run the hearing, while he came down to sit with the witnesses.  The room was quite full, a small, polite group of parents (even a few kiddos), interested supporters form various autism groups and organizations across the state, the insurance lobbyists, and other curious capitol onlookers - standing room only.
    Most of us were a bit surprised that there was a committee substitute, which means that language in the bill had been changed, and that the committee was now discussing a slightly different version. 
    The changes seemed to be minor, but definitely were noticed.
    Witnesses in support of the bill included first off two parents, who described the therapies they use and the difficulty of getting reimbursement from insurance companies.  Then a physician testified about the necessity to classify autism as a medical disorder, noting how developmental disabilities in general are discriminated against in insurance coverage.  Other witnesses covered more technical aspects, such as cost analysis and estimates, as well as legislation in other states.
    Some of the discussion centered on what types of policies this bill would affect
    One main point of contention that one senator raised is that with the committee substitute, the language had been changed to put in an exemption for small businesses, which means that if an insurance policy is sold to an employer with less than 50 employees, this law wouldn't apply, and the insurance company would not have to offer them autism coverage. 
    Typically, small businesses  and chambers of commerce do want to opt out of any insurance mandates, because they believe the cost will be too expensive to offer to the their employees, and make it difficult to offer benefits and afford health care for their employees.
    It was pointed out that if all ERISA plans which are governed by federal legislation are already not affected by Missouri laws, and the bill already contains an exemption for policies sold to individuals (as opposed to policies sold to employers), that exempting small businesses would greatly reduce the number of Missourians that could potentially be helped by this legislation.
    The sponsoring senator agreed, but explained he was trying to find a compromise that would be acceptable to both sides and that he felt if the legislation did not contain this exemption, then it would not be successful at all.
    After the scheduled witnesses, the committee opened up testimony to those in attendance that had traveled.  Many parents came forward to add their personal stories and tell how they supported the legislation.  Because of time restraints, no testimony was heard in opposition.  The committee asked that it be rescheduled for a later date, since those wanting to testify in opposition were lobbyists and could return another time, since they are in the capitol frequently.  The hearing ran over, and most senators had to leave, as they were back in session in the Senate chamber before the hearing concluded.  Other committees were running concurrently, and sometimes senators are scheduled in two places at once.
    The hearing will be taken up again at another committee meeting next week, same time, to complete the public testimony phase.

  • 2009 Legislative Session Updates
    Written by G. K. Luetkemeyer ,  An “Autism Mom” at the Capitol
    (I’m not a lobbyist, but I stop by the capitol between groceries, laundry, and kids!)

    February 13, 2009:  Jefferson City


    Autism Rally
    Kudos to everyone that attended the Autism Rally at the Capitol this Tuesday!  Families heard from several legislators sponsoring autism-related bills, including a new senator with a child on the spectrum.  Our legislative briefing was very informative - with lots of good advice.  (Check the website for more details!) 
    Good contacts were made, as well as new friends!

    The Buzz:  Many had such a good time at the Capitol that discussions are under way for an event there in April for autism awareness month.  The original reason for the Rally in February was because April is too late in the session to influence most decisions, especially budget!


    Insurance Coverage Update 
    SB 167  (Filed by Senator Scott Rupp, R- Wentzville)

     UPDATE:  Hearing is now scheduled in the Senate for Tues Feb 17,
    which means this bill is moving! 
    Click here to learn more details!
     The Buzz:  The bill sponsor, Sen Rupp, is also the chairman of the committee.
    And in this committee last year with almost all the same members, this bill was approved, with only one "NO" vote, but that senator is no longer serving!

    Insurance bills in the House:
    (Both similar to to SB 167)
    HB 298 (Grisamore) & HB 357 (Scharnhorst)

    HB 79 (Lampe, R - Springfield)
     
         

    Autism Projects
    SB 157:  proposes to codify the existing Missouri Autism Projects
    (Schmitt, R - Kirkwood)
           - HB 525 (Grisamore, R - Lee's Summit)

    UPDATE:  Hearing completed in the Senate on Feb 10.
    Parents from all five regional autism projects across the state testified in support of this bill, as well as DMH.  No testimony in opposition.
    The Buzz:  This bill might pass out of committee as a "consent bill", which it means it is more likely to move quickly, without debate.


    Education

    SB 175:  Requires "The Parents' Bill of Rights" for parents of children with an individualized education program  (Schmitt, R - Kirkwood)
           - HB 526  (Grisamore, R - Lee'sSummit)

    UPDATE:  Hearing completed in the Senate on Feb 11.  Two parents testified, as well as Judevine Center for Autism, in support of this bill.  No testimony in opposition offered.
    The Buzz:  Most likely the education groups (esp. school administrators) aren't too fond of this one!  That's ironic - the educators are NOT in favor of educating parents of their rights!

     

  • 2009 Legislative Session Updates
    Written by G. K. Luetkemeyer ,  An “Autism Mom” at the Capitol
    (I’m not a lobbyist, but I stop by the capitol between groceries, laundry, and kids!)

    February 6, 2009:  Jefferson City

    The past few weeks in Jefferson City seem to be productive, as bills are being referred and committee hearings have begun.  As we get ready for the Autism Awareness Rally at the Capitol next week on Tuesday, Feb 10, here's a quick run-down of legislation of interest.

    Insurance Coverage
    The autism-community "preferred" bill is: 
    SB 167  (Filed by Senator Scott Rupp, R- Wentzville)

    Insurance bills in the House:
    (Both similar to to SB 167)
    HB 298 (Grisamore) & HB 357 (Scharnhorst)

    HB 79 (Lampe, R - Springfield)

           But watch out for ...
    HB 569:  An insurance bill that IS NOT preferred
    This bill is an insurance company version - a mandated offering,
    but NOT coverage for autism
    (The expression "anything is better than nothing" doesn't apply here!
    It is not a family/consumer friendly bill!)

    Autism Projects
    SB 157:  proposes to codify the existing Missouri Autism Projects
    (Schmitt, R - Kirkwood)
           - HB 525 (Grisamore, R - Lee's Summit)

    Education
    HB 76:  Changes the laws regarding the identification, assessment, and education of children with autism spectrum disorder (Lampe, D - Springfield)

    SB 175:  Requires "The Parents' Bill of Rights" for parents of children with an individualized education program  (Schmitt, R - Kirkwood)
           - HB 526  (Grisamore, R - Lee'sSummit)

    HB 501:  Requires DESE to coordinate a program to provide ombudsman services to the children and families regarding special education  
    (Scharnhorst, R - St. Louis County)

    SB 85:  Creates the Missouri Special Needs Scholarship Tax Credit Program (Crowell, R - Cape Girardeau)

    HB 417:  Bryce's Law, which authorizes a tax credit for individuals who donate to a scholarship-granting organization   (Scharnhorst, R - St. Louis County)


    Budget
    Everyone is holding their breath to see what happens with the state budget.  The autism community hasn't received any specific bad news ... yet.  Let's keep our fingers crossed, and keep reminding legislators that even in times of decreasing revenues, autism is continually growing!


    If you especially like any of these bills, you can write or email the sponsors to thank them -  It never hurts the autism community to gain the reputation of "polite constituents"!


  • 2008 Legislative Session Updates
    Written by G. K. Luetkemeyer ,  An “Autism Mom” at the Capitol
    (I’m not a lobbyist, but I stop by the capitol between groceries, laundry, and kids!)


    Missouri Autism Legislative Overview

    May 8, 2008

    Jefferson City

    As the legislative session comes to a close, it's time to give a quick overview of the autism bills so far.
    The Autism Commission Bill (SB 768) creates Missouri Commission on Autism Spectrum Disorders sponsored by Senator Rupp is now through both the Senate and the House, and is on its way to the Governor, and is expected to be signed.  This will establish a state commission to consider autism issues in Missouri and officially report to the legislature.  It will be serviced by the Department of Mental Health and the Office of Autism Services.

    The bills relating to autism insurance coverage attracted a bit of attention this session, with versions in both the Senate and House voted out of committee.  But no other action was taken on any of the bills, and neither side had any bills to come to a floor vote.

    None of the autism bills relating to education (either in tax-credit/scholarship form or public school support) are appearing to be viable.  While the autism tax credit bill provided the most controversy, especially in the House, none of the controversy was over real autism issues.  It became a public school vs. private school argument which is a school choice issue.  Neither side disputed the fact that some schools are struggling to serve students with autism.  They just both have very different ideas about what to do about it.  It will be very interesting to see where and how this issue resurfaces, and if it has anything to do with autism when it does.

     

    Missouri Autism Legislative Overview

    April 12, 2008

    Behavior Modification Plans Needed in Jeff City?

    Many of us in the autism community spend a great deal of our time trying to modify behavior:  reinforcing desired behaviors and trying to extinguish or replace the undesired ones.  It seems that the Missouri state legislature might need some behavior modification plans for their own members.  This week, the “undesired behaviors” emerged in Jefferson City, with yelling, screaming, tantrums, and even a little pushing and shoving.  And, no, it wasn’t in a special education classroom.  The nastiness ensued in the capitol in the House chamber this week, some in the name of autism. 

    The controversial special needs/autism tax credit bills earned their day of infamy this legislative session when the House took up floor debate over whether the tax credit issue could be tacked on to a larger bill involving teacher salary increases.  The House supporters of the tax credit scholarship bill were not successful in their attempt to put the two bills together, as the House voted to strip off the tax credit amendment.  The unpleasantries followed with plenty of bitter words all around.

    Click here for “real” news articles and coverage
    St. Louis Post Dispatch coverage from April 11, 2008

    Good news for the legislature:  Behavior modification programs are available in Missouri! 

    Bad news:  The providers are few, the waiting lists are LONG and insurance doesn’t cover a penny!


     

    Missouri Autism Legislative Overview

    April 1, 2008

    In Jefferson City, it has been a very busy session for appropriations and legislation involving autism. The Missouri State Legislature is primarily focused on the state budget this session.  The House finished its work on all the appropriations bills before the spring recess.  The entire budget package has been sent to the Senate to the Appropriations Committee. The largest ever increase in autism funding was proposed in the Dept. of Mental Health budget.  This is attracting some attention, but relatively speaking, it is “small potatoes” when compared to the overall DMH budget and the entire state budget.

    LEGISLATION:  Autism is certain starting to show up on the radar of many legislators, but we are still considered “new-comers” to the political scene.  The Missouri Blue Ribbon Panel on Autism, which concluded and filed its report in late 2007, seems to have sparked interest in several areas and by a wide variety of legislators.  Currently eleven bills are filed which specifically deal with autism.  That sounds like a record, and it is, but in a stormy sea of over 2,400 bills filed this session, it is easy to lose sight of them.  Not all the bills filed are a direct recommendation of the Blue Ribbon Panel, but many are related.  The bills involving mainly fall into three categories:  State systems/structures, insurance reform, and education.  Some bills are non-controversial, such as the bills that would establish the Missouri Commission on Autism Spectrum Disorders and the Office of Autism Services in DMH.

    INSURANCE:  The bills related to insurance coverage are similar to legislative efforts in many other states across the nation, but aren’t gathering any wide-spread attention in our capitol this session.  All of these would require (mandate) insurers to pay for autism-related health services prescribed by a physician, including ABA.   The details in the various bills differ slightly, but it is the concept that is a new issue, and thus a difficult sell. SB 1122 completed its hearing on April 1 without any fanfare.   The insurance industry predictably opposed this bill, as they will any type of such a bill, but not to just single out autism… they categorically oppose ANY insurance mandate.  Missouri does have other insurance mandates in use, but Missouri is not considered a “mandate-friendly” state.

    EDUCATION:  The bills attracting the most attention by far (i.e. most controversial!) this session have been the bills filed relating to scholarships through tax credits/vouchers for special needs students. The senate took this issue up for lively debate last week.  The lines are clearly drawn:  the “school choice”/private school crowd vs. the public school education crowd.  While this hotly-debated issue is IN THEORY about special needs students, the reality is that it is an issue over using any state funds (or perceived use of state funds through tax credits) in a private school. 

    While it is very unlikely that the majority of the bills relating to autism will actually get to the floor for a final vote, many legislators are increasingly taking notice and an interest in autism issues.  BUT …there still is a LONG way to go in helping educate them about the autism community in Missouri and their diverse needs.  

     

     

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